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My situation was very similar to yours. Was 3+4 pre surgery, 4+5 after. Surgeon believes he “got it all”; margins were clear, as were the lymph nodes. He said there was one area of ExE but was inside the capsule. I had ZERO incontinence issues(he said I was one of the fortunate 10%!). I asked for a post op decipher test which came back high risk. He said we’ll test PSA 2 months after the surgery and decide where to go from there. My PSA has been < 0.01 for two years(just “celebrated” two year “anniversary “ of my RP). I’ve asked if any additional treatment is necessary but he and my regular surgeon(who also specializes in prostate health) said it wasn’t at this time. I decided to call a Cancer Center of Excellence for another opinion. I talked to one of the nurses and when I told her my PSA score she said, “that’s great, you’re in remission”. My surgeon also said that recurrence of G9 usually occurs in the first two years; 5 years is more encouraging and ten years indicates it’s gone. He also indicated that I can expect to live 12-15 years. I’ve asked to get my PSA checked in 6 months(he was recommending a year). BTW, I am now 73 1/2. I work out everyday and have made some dietary changes, mostly eating fruits and veggies, no red meat, almost no dairy and no processed foods or sugars. Keeping a positive attitude (I still have anxiety)and still pray everyday. I too, hope it is one and done. I hope this is helpful. Best wishes and keep the faith! 🙏🤞Please keep in touch!

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Replies to "My situation was very similar to yours. Was 3+4 pre surgery, 4+5 after. Surgeon believes he..."

@kjacko very helpful and hopeful - thank you for your reply!

@kjacko
It took 3 1/2 years after surgery before my PSA started rising. Keep up the six month tests.

I do know people with Gleason nine that have lived 20 or 30 years Before reoccurrence, They came back to one of the forums. I Attend, That’s how I found out. Could very well be that many others didn’t have a reoccurrence. Good luck!!