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DiscussionWhat to do? Post RP, Gleason 9, Prostate ductal adenocarcinoma
Prostate Cancer | Last Active: Nov 8, 2025 | Replies (59)Comment receiving replies
Replies to "@jeffmarc, strangely enough when I mentioned to the doctor or asked if there could have been..."
@sriddle1 I have found that most doctors prefer to focus on the situation at hand. While they might find talking about the link between prostate cancer and melanoma very interesting (like we do) they don’t have time for it. That’s why we join groups like this!
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@sriddle1
One thing people find is that some doctors are not that well informed about everything. It is not unusual for them to not know the answer to a variety of questions. Urologist perform the surgery and they can’t keep up with everything going on with prostate cancer like oncologist that specialize in prostate cancer can.
If you have a GU (Genito Urinary) oncologist, they probably can answer the question for you accurately. I have a GU oncologist who can answer any question I’ve ever placed to her. She specializes in prostate cancer and knows just about everything. I know a number of other GU oncologist that are just as knowledgeable.
I’m not sure what his PSA was when you had the PSMA pet scan. If it was below .5 Then the accuracy is lower as the PSA drops. One thing people don’t realize, If the metastasis is smaller than 2.5 mm then it can’t be seen by the pet scan. A UCSF radiation oncologist gave a talk on PET scans and mentioned that even 5 mm was tough to see. To get the best answers about a pet scan, you want to speak to the radiation oncologist.
Sure good to hear you got to speak to the doctor about what happened.