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Mesenteric Panniculitis and Sclerosing Mesenteritis: Let's connect
Digestive Health | Last Active: Nov 19 1:00pm | Replies (1571)Comment receiving replies
@lisalucier
Thank you for moving my post to the correct platform. I didn't find anything when I did my initial search. I appreciate the connections to other members dealing with MP. The cramping and very heavy feeling in my abdomen (difficult to sit or stand up straight) that takes days to go away and comes and goes every few weeks/months, has been tiring. I also haven't been confident in my regular GP and the first gastroenterologist I saw in January. So much has been missed. But I am working with a the GI specialist who is still gathering all my records before we move forward with a plan. I see her again on the 11th. In the meantime, I had a 'flare' of pain starting yesterday afternoon and have been in bed with a moist heating pad....really trying to not go to the ER.
Replies to "@lisalucier Thank you for moving my post to the correct platform. I didn't find anything when..."
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Thank you, @lisalucier for tagging me. Hi @aksandralynn, it is nice to meet you. I am sorry you are having so much discomfort and this is affecting your day-to-day.
I have been told I have diverticulitis but I really do not understand the root of what is happening with me yet. I am not very much help for you in that regard. I do understand how miserable you must be at times. I have had to blend my food or even go a day or two without eating just keep my pain tolerable. Getting to my current care team has been what has helped me but it has not been an easy fix. I relate to your comment that you can’t keep living like this. You can do this!
You mentioned how infrequent mesenteric panniculitis, also called clerosing mesenteritis occurs. You may have reviewed information Mayo Clinic provides about it already, but if not I am providing a link. I particularly want to point out:
- Mayo Clinic doctors care for more than 300 people with sclerosing mesenteritis each year.
- Mayo Clinic doctors and scientists are studying new ways to diagnose and treat sclerosing mesenteritis.
- There is a list of publications about sclerosing mesenteritis by Mayo Clinic doctors that may help your doctors. Scroll down to the Reearch section of the Doctors and Depatments page to find a link to this list.
https://www.mayoclinic.org/diseases-conditions/sclerosing-mesenteritis/symptoms-causes/syc-20355087
You mention going to the ER. How do they assess and treat you when you are there? How are you sleeping?