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Mesenteric Panniculitis and Sclerosing Mesenteritis: Let's connect
Digestive Health | Last Active: Nov 19 1:00pm | Replies (1571)Comment receiving replies
@aksanralynn - hello, and welcome to Mayo Clinic Connect. So that you can easily chat with others who are talking about mesenteric panniculitis (MP), I moved your post here to this existing discussion:
- Mesenteric Panniculitis and Sclerosing Mesenteritis: Let's connect https://connect.mayoclinic.org/discussion/mesenteric-panniculitis-or-schlerosing-mesentertis-auto-immune-around-small-intestine/
Hoping you can meet members here such as @peterose @bluecars2 @sdrussett1 @spankytwo2 and others, who can share a bit of their journeys or that of a loved one with MP. I'd also like to introduce you to @jlharsh.
Sorry to hear about the severe cramping. I'm glad you could at least figure out a way to get some sleep. When you say you just can't keep living like this, are you referring to the level of abdominal pain? Any other symptoms bothering you?
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@lisalucier
Thank you for moving my post to the correct platform. I didn't find anything when I did my initial search. I appreciate the connections to other members dealing with MP. The cramping and very heavy feeling in my abdomen (difficult to sit or stand up straight) that takes days to go away and comes and goes every few weeks/months, has been tiring. I also haven't been confident in my regular GP and the first gastroenterologist I saw in January. So much has been missed. But I am working with a the GI specialist who is still gathering all my records before we move forward with a plan. I see her again on the 11th. In the meantime, I had a 'flare' of pain starting yesterday afternoon and have been in bed with a moist heating pad....really trying to not go to the ER.