← Return to resentment about restrictions and effort for managing BE

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Profile picture for sarahlynn1960 @sarahlynn1960

Sue, you really ARE a role model, but you have definitely earned it!!!
I wanted to add to everyone else’s’ great comments that I’ve had a few nights that I acted like a baby and threw my neb attachments across the room saying, “dammit, I’m just not doin it”. (By the way, those were the cheap neb disposable attachments - not my expensive new e-flow stuff 😳)
However I still will have “dammit” nites occasionally, when I’m “just not gonna do it”. By the next day though I’ve got my big girl pants back on and I’m peacefully back on track. It helps to remind me that in the end, it’s still my l choice whether i do all this stuff. So if it helps you, take a break now and then.
It also helpful that I adopted doing the different things slowly instead of changing my whole life all at once. Mostly that was because I only learned the different facts slowly from different sources, but if you are overwhelmed you could back off a little here and there, and ease into some things. We all hear you though!🥰🥰

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Replies to "Sue, you really ARE a role model, but you have definitely earned it!!! I wanted to..."

@sarahlynn1960 Thank you. I too have thrown my share of tantrums over the years! But honestly, the older I get, and the more I see and hear of others dealing with complex health issues, the more I am grateful to still be able to do what I do.

@six5532one By way of encouragement, have you seen the from Dr Honda at the NJH conference in September? She talks about EXACTLY what Sara Lynn says - choosing the most critical actions to take, and letting the rest go. Here is the link:

@sarahlynn1960 I really appreciate your anecdote about the nebulizer attachments. It helps to connect with someone who relates to the level of frustration I feel.