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How does your pain come back when decreasing dosage?
Polymyalgia Rheumatica (PMR) | Last Active: 5 days ago | Replies (57)Comment receiving replies
When I try to taper from 15 to 10, I’m ok for about two days. Then the pain starts back
Mostly on one shoulder. I don’t wait for more widespread pain, I immediately go back to 15 mg. Originally my pain was so bad I went to bed with a sore shoulder and woke up a cripple at 3:00 AM. Fortunately I was diagnosed quickly as I asked my doc, what kind of injury would center in shoulders and hips? He tested my ear and it was over 100….as high as the chart went. Took prednisone 20mg and no more pain at all. I’m only in my 4th week, but I want off!
Replies to "When I try to taper from 15 to 10, I’m ok for about two days. Then..."
@bonandrods
Ok taper is a trial and error.
How long are you at a number and how much you taper by.
My experience and others I have read on this blog kind of go like this…. REMINDER WE ARE ALL DIFFERENT
Never drop more than 15% at a time, and 10% at lower doses.
Stay at 30 days between tapers.
When there is “pain” you have to figure out if it’s PMR pain or something else and live with it for a few days to be sure.
Last tip is try alternate days for a week before the actual drop. I.e., 20 day 1, 15 day 2, 20 day 3, 15 day4, etc. After a week if no problem, go to all 15.
Patience is a virtue 🤔
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@bonandrods 🤣🤣He didn’t test my ear…..he tested my ESH!