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Repatha, side effects and what comes next?
Heart & Blood Health | Last Active: 4 minutes ago | Replies (128)Comment receiving replies
@martspir
I decided it is time for me to give back. I have found the information on the Repatha threads very helpful because as you say, there is not much out there. I recently ( a month ago) stopped Repatha due to pain in my hands which made it hard to hold things among other issues. I had been on Repatha for 10 months, and the hand pain started with the last 2 injections. Prior to that I had developed leg and back pain, and was going to PT which wasn't helping. I am a very active and athletic 70+ year old, normal weight, mostly vegan. I am also now realizing that I was depressed on the Repatha. So after being off for a month, the depression is gone, the hands are slowly becoming less painful and the back pain is slowly dissipating. I hope all the pain goes away, they say it takes 2 or 3 months to get out of one's system. Also, I am looking for an alternative, I have had body pain on several statins which led to the Repatha. I have a high Lipoprotein a level and LDL issues which are genetic.
Replies to "@martspir I decided it is time for me to give back. I have found the information..."
@backhand
I got off repatha due to back pain
Just switched to praluent as it does not list back pain as a side effect
Time will tell
@backhand I found the Neurocognitive Events the most troubling. That doesn't mean other problems wouldn't manifest. I took the 3rd injection on October 29th, and that will be the last...Never in my life have I had mood swings or cognitive issues of any kind...I like how these trials conveniently include side effects "statistically not significant" They are significant when you are experiencing them!
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@backhand Thanks for your response. I also have high ldl but no other markers. Low blood pressure, good hdl, triglycerides etc. I had a heart catheter procedure but the doctor said I did not need stents but did have some heart disease. So apparently, I'm not blocked enough to put them in. Since I am 76 and otherwise healthy I ask myself if the quality of life verses these cholesterol lowering drugs is worth continuing medication. I've decided to go to functional medicine doctor for ,perhaps, see if there is another path. I do believe the ldl is hereditary as heart disease runs in my family but so far I just don't seem to do well with these drugs.