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Had my first (and last) Reclast infusion in August 2024 at the urging of my PCP and an Endocrinologist. Was fine for the first 2 months, then began experiencing some migratory hip pain, then started having trouble sleeping on my sides, turns out, I developed Gluteal Tendinopathy, I'm a 68 year old female, I have some mild osteoarthritis in hips and knees, so every Dr I've seen brushes off my pain as "old age" and/or "arthritis". I had been begging my Dr for an MRI since May of this year, to take a look at my hips. Instead she ordered more X-rays, which showed the same mild arthritis that I've had for a few years now with little change. She sent me off to PT, which I've done for 4 months now. The pain continues and is worsening. I was then referred to a Sports Medicine Dr. who injected hydrocortisone into my Bursa Sacs, for the the Gluteal Tendinopathy and injected hyaluronic acid into my hips. Both gave very temporary relief. I asked that Dr to order an MRI and was told "it's not time". A couple of months later, I was referred to an Orthopedic PA and I again begged my referring PCP for an MRI to have ready for the Ortho appt and she did order it but only on the right hip, because that is the side with the most pain and I was having difficulty lifting that leg (really think it should have been a bi-lateral MRI, since the pain migrates between the two hips). The results came in an hour before the Ortho appt and it shows a Labral Tear in the right hip, something you normally see as a result of a sports injury. I have now been given crutches and told to be non-weight bearing on my right hip for 4-5 weeks, to see if the tear will repair itself (from what I'm reading, Labral Tears, do not self-repair). In the meantime, I am putting all my weight on my left leg/hip, which has developed a tight IT band and a tinking sound (like a tight guitar string). To think that I took Reclast to help with osteoporosis and ended up with all these joint (hips and knees), muscle, ligament, tendon, issues and a Labral tear. I am not an athlete. I didn't injure myself before or after the Reclast. There is no other explanation for everything that I'm now experiencing, other than the Reclast. It has severely, negatively affected my life. Prior to the Reclast infusion, I was healthy. Would hike with my kids, walk my dog every day, 2-4 miles per day. Ride my bike. Not any more. Now I am hobbling around on crutches, everyday, while one Dr after the next, kicks the can down the road, while telling me I'm just an older woman with arthritis.

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Replies to "Had my first (and last) Reclast infusion in August 2024 at the urging of my PCP..."

@msmaz57 Thank you!

@msmaz57
Hopefully time will lessen your symptoms and pain. I’m a male; 17 months out from having my first and last Reclast infusion. I developed severe pain in both shoulders and my left foot. It started out not being able to move without severe pain and discomfort; would wake me 4-5 times a night. I also found the more I made myself move the better throughout my day was; although I would pay for it at night! 17 months out, shoulders do not constantly lock up like they did. My arms now have this tingling pain off and on and left foot flares up randomly. I take no medication for the pain outside extra strength Tylenol as needed and go to physical therapy biweekly. I had zero symptoms prior to the Reclast infusion.
I also reported my issues with the FDA, hopefully others do the same!
I’ll provide their link! Best of luck!
Stay positive!
For on-line reporting to FDA: https://www.fda.gov/safety/medwatch-fda-safety-information-and-adverse-event-reporting-program
For phone reporting: 1-800-FDA-1088.

There is a lot of information online on Reclast side effects- drugs.com, the FDA and Pfizer's own drug insert: https://labeling.pfizer.com/ShowLabeling.aspx
In addition to the brief info below, Pfizer has a thorough chart with every side effect and frequency reported. Not sure why doctors don't look at this.

@msmaz57
So sorry for your sufferings with Reclast! Your story touches all of us that were prescribed this medicine, and had trust in our doctors. I suspect that the whole situation with medicines for OP reflects little attention that is given in medicine and society to people of older age with the logic that illness and sufferings belong to this age.
Best wishes to you, and please inform about further developments.