← Return to Benign carcinoid tumor in bronchi tube

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Profile picture for nannybb @nannybb

He is a cancer specialist who told me he knew all about carcinoid tumors. He never mentioned them as "NETS" and I had never seen it in all my reading about this type of lung cancer.
I had a problem with seeing the post-op X-ray stating it was done for a benign tumor. That made no sense to me.
When I asked about it, he said it had to be listed that way for insurance to pay. To my way of thinking, that is backwards
First off, I was told to have surgery because the tumor had started growing. I just don't understand why it would be listed as benign. He had done a biopsy, so he should have known at that time. All he said was the biopsy showed it was cancer.

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Replies to "He is a cancer specialist who told me he knew all about carcinoid tumors. He never..."

@nannybb I've had 2 biopys which showed benign carcinoid tumor I've had 40% of tumor taken out on 5th of Sept this year also came back benign my surgeon rang me 2 weeks ago I've asked is it a benign tumor he said yes it's a benign typical carcinoid tumor which I googled and it said grade 1 this is why I've posted here to get help off these lovely people @tomrennie and @californiazebra thank you so much guys much appreciated

@nannybb I just copied this from Mayo's website:

Carcinoid tumors are a type of slow-growing cancer that can arise in several places throughout your body. Carcinoid tumors, which are one subset of tumors called neuroendocrine tumors, usually begin in the digestive tract (stomach, appendix, small intestine, colon, rectum) or in the lungs.

Maybe you want to consider getting a second opinion. I agree with you that your process with this doctor is rather unusual.