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Benign carcinoid tumor in bronchi tube
Neuroendocrine Tumors (NETs) | Last Active: 3 days ago | Replies (631)Comment receiving replies
@jessie1990 I am glad that they responded. Did they give you a referral for the NET specialist? You have a little time before the surgeon is available in December. A second opinion in your case can only help ease your concerns. Walking is a great idea. I have been coached many times by my docs to never stop moving. I go for walks every day.
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@tomrennie
I agree about the second opinion with a lung NETs specialist while you wait. Not sure how hard that is in Ireland. I believe they’ll agree with surgery and then just monitor with scans, but they might have some valuable input on how to approach the surgery itself. My question to the NETs specialist would be, “Do they need to remove two full lobes or can they remove two partial lobes to preserve healthy lung tissue?” That answer is very case specific so they would need your records. It’s always comforting to have two doctors agree. Have you asked the surgeon how many lung NETs patients s/he has treated?
Great that you’ve been given a time frame for surgery. December will be here before you know it. Being young works in your favor for recovery. Yes, keep walking. I walk at least 2 miles a day and always have. It’s good for the mind, body and soul.
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@tomrennie I haven't mentioned that to her totally forgot to ask actually I will give her a ring tomorrow and ask yes I'm just hoping I'm home in time for Xmas with the kiddies yes I walk every where also I use be a gym freak for while stopped going over all this going on but looking to go back once all this is over