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bob1955 avatar

ADT, maybe not?

Prostate Cancer | Last Active: 21 minutes ago | Replies (30)

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@madpuppy74
I think your post reflects what many of us on MCC promote. That what one person taking ADT or hormone treatments side affects will not determine what yours will be. All bodies are different and what one will suffer from side affects others will not.

I see many post saying not an issue takine hormone treatments and then we read posts like yours saying "be careful." Hormone treatments are serious drugs and have side affects. Be prepared for those side affects and not rely on what outcomes others has citing little or no side affects or dealt with them with little discomfort. That might suggest you will have the same side affects when it does not.

In this case the old caveat "prepare for worse and hope for the best is very appropriate." I did not have hormone treatments. I was originally prescribed them before I had Decipher test. My Decipher came back low risk not original intermediate risks biopsies result gave so the hormone treatment recommendation was removed.

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Replies to "@madpuppy74 I think your post reflects what many of us on MCC promote. That what one..."

@jc76 I wish my husband had your experience back in 2021 when his PSA spiked. He had his only biopsy in 2019 that showed low risk & MRI that showed no metastasis. The urologist said the CT showed suggested mets to lymph nodes so he started ADT immediately & put us in shock w/death threats! Then the oncologist put him on Zytiga even after the CT showed no mets 1-1/2 mo after 1 Lupron shot. So then, each urologist and oncologist we went to over the next 4yrs just carried on with the Lupron every 3mo and Zytiga+Prednisone every day. I asked to stop Zytiga after 3yrs and his PSA every 3mo stayed undetectable! We have been offered no further testing in all this time. Except that I asked to have the genetic testing & it came back low risk, but they never offered the genomic testing (in case treatment could be improved for his prostate cancer if there is any left!) We are in the process of stopping treatment & going back to Active Surveillance. Sure need prayers. Thanks!