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Prostate Cancer | Last Active: 21 minutes ago | Replies (30)
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@jc76 I wish my husband had your experience back in 2021 when his PSA spiked. He had his only biopsy in 2019 that showed low risk & MRI that showed no metastasis. The urologist said the CT showed suggested mets to lymph nodes so he started ADT immediately & put us in shock w/death threats! Then the oncologist put him on Zytiga even after the CT showed no mets 1-1/2 mo after 1 Lupron shot. So then, each urologist and oncologist we went to over the next 4yrs just carried on with the Lupron every 3mo and Zytiga+Prednisone every day. I asked to stop Zytiga after 3yrs and his PSA every 3mo stayed undetectable! We have been offered no further testing in all this time. Except that I asked to have the genetic testing & it came back low risk, but they never offered the genomic testing (in case treatment could be improved for his prostate cancer if there is any left!) We are in the process of stopping treatment & going back to Active Surveillance. Sure need prayers. Thanks!