@tomrennie
Thank you for your input. Typical (grade 1) and atypical (grade 2) classifications are specific to lung NETs. Typical is the slowest growing and what I have. My Ki-67 is only 2%! That’s really slow growing. Typical carcinoids are less likely to spread than atypical. The Ki-67 for atypical is higher (usually over 5%). There is also a mitotic count used. Both Ki-67 and mitotic rate are methods of determining how many cancer cells are dividing but the two measurements are not equal. The lower the better on both.

I was thrilled to hear 2% since the Ki-67 for my very aggressive breast cancer tumor was 50%. I’m telling you this to give some perspective on how slow growing typical lung carcinoids are. The Ki-67 percentage of carcinoids doesn’t generally go as high as some other cancers. Keep in mind that all cancers are not created equal. Typical carcinoids are very treatable. I’m doing very well on octreotide injections even though both lungs are filled with carcinoids. I’m even doing very well with my recurrent breast cancer. Medical advances are happening all the time. I know the unknown is scary, but please try to assume the best because I believe it will all turn out better than you think.