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Anyone have COPD and had to do Reckast? What were side effects/how bad
I have COPD, 69 female had l4l5 fusion, 7 mos out and have osteopenia on Evenity, have to do Reclast in February soon: I'm scared to death it says worsening symptoms and breathing problems, possible respiratory failure with having COPD pre existing, MAKES SYMPTOMS WORSE ALSO HAVE IMMUNE SYSTEM MESSED UP; SEVERE ALLERGIES CAUSE ASTHMA, AND HAVE GASHIMOTOS THYROUD AUTOIMMUNE. DOCTORS ARE NOT GOING TO KNOW HOW SEVERE MY immune response could be till the drug is given. I DONT WANT TO DIE FROM RESP FAILURE. ANYONE HAVE EXPERIENCE WITH THIS NO MATTER HOW TERRIBLE OR NOT SO BAD I NEED TO KNOW PLEASE.
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My sister has copd and has had reclast with no problems! Hope the same for you!! Good luck
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2 ReactionsOk. Thank u for letting me know.
I have had osteoporosis since 2020. I also have COPD, which developed as a post-COVID condition. It was diagnosed in May 2022. I took Forteo & then generic teriparatide (daily injections) for a total of 4 years, prescribed by my endocrinologist. That resulted in significant improvement in my bone density. In May 2024, I got an IV infusion of Reclast. A year later My bone density had improved again, going into the range of osteopenia, so my doctor ordered a second infusion for 2025, which I received in July. I have never noticed any side effects from reclast.
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2 ReactionsI also had the rec last infusion for a cpl years and I had NO side effects either.
I am on oxygen 24/7 for scoliotic restrictive lung disease and asthma. I asked for a lower dose- Zometa which is 4 mg rather than 5 mg in Reclast-same drug. Studies suggest lower dose is just as good. I am 83.
I can get palpitations normally and noticed a slight increase for a few days but really no side effects I could put my finger on since I have other issues.
Retired nurse anesthetist.
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2 Reactions@sudsie58. Thank u for your info. Was your endo anyone at mayo Rochester who did your reclast?
@billieann00. Thank u for letting me know. Does it burn arm when goes in.
@karenjaninaz did u have mayo Rochester mn as an endo curious. Thank u for info.
@findtheanswersdn No, I live in San Diego, CA & my endocrinologist is in the nearby community of Escondido.
I joined this group because I received care at Mayo Clinic Phoenix/Scottsdale, AZ for a rare, incurable gastrointestinal condition that was beyond the expertise of the best esophageal motility GI doctors at our nearby UC San Diego Health. I became severely malnourished because of difficulty and pain when trying to swallow food back in mid-2016. I was able to gain some weight with gastrostomy tube feeding, to reverse the malnutrition, but it wasn’t until July 2018 that I had my first appointment and testing at Mayo AZ. By October, after a number of tests & 3 trips there, I finally was diagnosed with Achalasia. I surgery that month to cut muscles at the junction of my esophagus & stomach, to make it easier for food to pass through. Nine months later, I had another surgery to reduce the amount of reflux I was having , which developed as a result of the first surgery (very common with this condition).
I am very grateful for the Mayo physicians who helped me & the care I received there, & I highly recommend Mayo Clinic to people I meet who have complex health problems that are not being properly diagnosed & treated in their communities.
Hubby in his 80s with pulmonary fibrosis had no problems with Reclast.