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Benign carcinoid tumor in bronchi tube
Neuroendocrine Tumors (NETs) | Last Active: 3 days ago | Replies (631)Comment receiving replies
@jessie1990 My net tumors were never classified as typical or atypical. The growth rate of my pnets are measured on a ki-67 grading scale. I am unaware of any instances where the growth rate changes. Lymph node involvement usually begins near the primary tumor. I agree with your logic that if a nearby lymph node was benign, then anything further away should be the same. This is an example of why a specialist is really important. Please keep trying. We are fortunate to have the input of @californiazebra. She will help you ask more specific questions about lung carcinoids during your next appointment.
Replies to "@jessie1990 My net tumors were never classified as typical or atypical. The growth rate of my..."
@tomrennie thank you
@tomrennie hi lung nurse rang me today said it will be around middle of Dec I'm looking at for surgery as surgeon is away for awhile and it's very unlikely the part that is left is going to atypical because the portion the removed was quite big that came back as typical make sure I keep up walking and stuff before surgery it will help me wit recovery
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@tomrennie
Thank you for your input. Typical (grade 1) and atypical (grade 2) classifications are specific to lung NETs. Typical is the slowest growing and what I have. My Ki-67 is only 2%! That’s really slow growing. Typical carcinoids are less likely to spread than atypical. The Ki-67 for atypical is higher (usually over 5%). There is also a mitotic count used. Both Ki-67 and mitotic rate are methods of determining how many cancer cells are dividing but the two measurements are not equal. The lower the better on both.
I was thrilled to hear 2% since the Ki-67 for my very aggressive breast cancer tumor was 50%. I’m telling you this to give some perspective on how slow growing typical lung carcinoids are. The Ki-67 percentage of carcinoids doesn’t generally go as high as some other cancers. Keep in mind that all cancers are not created equal. Typical carcinoids are very treatable. I’m doing very well on octreotide injections even though both lungs are filled with carcinoids. I’m even doing very well with my recurrent breast cancer. Medical advances are happening all the time. I know the unknown is scary, but please try to assume the best because I believe it will all turn out better than you think.