Hi, I was officcially diagnosed with a pituitary adenoma on August 4th of this year. Although, I have felt the symptoms since I was 29 and did not understand what was going on. I am now 35 and I finally get to see an endocrinologist in a few days. I have been trying to wait patiently for 6 months for this appointment. I will be trying to get hormone replacement therapy. But currently I am experiencing a lot of symptoms that are negatively affecting my life. I don't feel like myself anymore. I feel like a different person, that is probably the worst symptom. It's a horrible experience to have. Does anyone have any advice on how to stay positive during this? Religion does not comfort me. I joined this group because everyone seemed so open and I don't have a lot of people I can talk to about this. Thank you in advance!
Of course you do not feel well. The adenoma is messing up your hormones. This is a way your body is telling you something is wrong. Your endocrinologist will be taking lots of different blood tests and an MRI. Depending on the pituitary adenema and its location, there are different treatments i.e surgery, medication, etc. My husband had a pituitary adenoma and it was affecting his vision. He had surgery and it was successful. Initially he needed four hormones replaced and eventually ended up with three hormones replaced (the pituitary must have healed somewhat). He feels and looks better than most people his age and does not even have a weight problem. So out of the ashes of despair came something good (good health). Just make sure your endocrinologist is VERY experienced with pituitary problems. My husband sees an endocrinologist and neurologist at the same time at the Pituitary Clinic at Strong Hospital, Rochester, NY.
So sorry to hear that you are going through this. I am not a doctor but rather a person like yourself that was dealt this card. I had a 10mm Pituitary Macroadenoma. You are way a head of the process in my opinion. At least you recognized the issue with your Pituitary Gland by I am assuming your mood-personality change. I did not and others I have heard about did not either. It does affect your moods and vision. So glad that you are seeing an Endochronologist and I assume a Neurosurgeon. Get the ball rolling. The smaller the tumor the less invasive the corrective procedure. I had mine removed 3 years ago and 10mm was the number that determined what procedure would be utilized to remove the tumor. Sooner the better. Some have serve vision issues. In my case I just was informed that I have optic nerve damage because to the tumor. My understanding that the vision issues are not correctable. Fact check this. Stay on this site as it is great and reach out to loved ones and those you are close to. All journeys are unique. Good luck to you. This is more common that you presently believe. You are not alone.
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Hi, I was officcially diagnosed with a pituitary adenoma on August 4th of this year. Although, I have felt the symptoms since I was 29 and did not understand what was going on. I am now 35 and I finally get to see an endocrinologist in a few days. I have been trying to wait patiently for 6 months for this appointment. I will be trying to get hormone replacement therapy. But currently I am experiencing a lot of symptoms that are negatively affecting my life. I don't feel like myself anymore. I feel like a different person, that is probably the worst symptom. It's a horrible experience to have. Does anyone have any advice on how to stay positive during this? Religion does not comfort me. I joined this group because everyone seemed so open and I don't have a lot of people I can talk to about this. Thank you in advance!
Of course you do not feel well. The adenoma is messing up your hormones. This is a way your body is telling you something is wrong. Your endocrinologist will be taking lots of different blood tests and an MRI. Depending on the pituitary adenema and its location, there are different treatments i.e surgery, medication, etc. My husband had a pituitary adenoma and it was affecting his vision. He had surgery and it was successful. Initially he needed four hormones replaced and eventually ended up with three hormones replaced (the pituitary must have healed somewhat). He feels and looks better than most people his age and does not even have a weight problem. So out of the ashes of despair came something good (good health). Just make sure your endocrinologist is VERY experienced with pituitary problems. My husband sees an endocrinologist and neurologist at the same time at the Pituitary Clinic at Strong Hospital, Rochester, NY.
So sorry to hear that you are going through this. I am not a doctor but rather a person like yourself that was dealt this card. I had a 10mm Pituitary Macroadenoma. You are way a head of the process in my opinion. At least you recognized the issue with your Pituitary Gland by I am assuming your mood-personality change. I did not and others I have heard about did not either. It does affect your moods and vision. So glad that you are seeing an Endochronologist and I assume a Neurosurgeon. Get the ball rolling. The smaller the tumor the less invasive the corrective procedure. I had mine removed 3 years ago and 10mm was the number that determined what procedure would be utilized to remove the tumor. Sooner the better. Some have serve vision issues. In my case I just was informed that I have optic nerve damage because to the tumor. My understanding that the vision issues are not correctable. Fact check this. Stay on this site as it is great and reach out to loved ones and those you are close to. All journeys are unique. Good luck to you. This is more common that you presently believe. You are not alone.