@phoenixuprising I certainly understand that apprehension. I just joined a Facebook Myositis group, and I was pretty excited to see that there is someone there who did the trials who seems to be in remission. If you're interested, I can message you and give you the information. I'd have to see if I can figure out who it was, but I remember that she seems to be quite open about it and others were asking her questions. Maybe if you join the group you could throw up a post asking if anyone has done the trials. I think she'd respond - then you could approach her with any questions you have. Just a thought 🙂