Slow posting. Well, I had my 6-month CT scan last month. My nurse was out on vacation, and the doctor did not have anyone upload the report to the portal. He has never called or reported any results like that. His staff does. My nurse answered my question in the portal when she returned the 27th. She said the results are good. What is good? Might i see the report??? It was posted the next morning. What was good was the thyroid to the lungs, no new growths and what is in my lungs is lessening. I had not been worried, and it was a reminder to not worry. What is there will hopefully stay as is. I feel good when i walk, jog and sometimes run. Frankly as i have said, some days it is hard to believe I had a transplant.
Taking Gerontology classes in 2020, I took a class on death and dying and was tasked to write my own obituary. Since then, I always read them in the LA Times. Over the weekend I read two that made me stop and think. Both accomplished men and both having had BMT's as that was the solution for their AML. Three years was the extra time they got. It made me think how each of us has different factors. I had MDS and did not follow a watch and wait to see if mine progressed to AML. The stars aligned once i found my caregiver to house me for 70 days. Having my BMT at City of Hope was a blessing. My younger sister goes to see a new Dr. at her cancer hospital in Western NY. They are starting a new division focusing on genetics and treatments. My sister sent me his name, and I looked him up. I am letting my sister know what symptoms I had and how i got to a BMT.
TP53 mutation, 5 Q deletion, chronic low white cells and platelets. Getting worse and not better. My bone marrow biopsy showed these results and the fact my blasts were less than 3% at this time. This was 2 years ago. Crazy. I said to my sister when the results came in for the BMB and the Dr. said MDS, I thought he was wrong. No way. Then i looked at the official results he showed that were confirmed by labs. It was my official blood results. Not ones he made up. Today I know if i have a yearly visit with this office, I will keep in mind my health is what i do for my body.
So, for today, I still walk, most days, 6 miles a day and drink half my body weight in oz. of water.