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Visit to National Jewish Health in Denver, CO

MAC & Bronchiectasis | Last Active: Apr 29 7:16am | Replies (152)

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@sickalot Sepsis is so scary, I was thinking you must have had bad pneumonia to get sepsis. I'm sure glad you got through it. Also, good that you are nebulizing, hopefully with 7% twice daily. When I was at NJH, Dr put order through for vest and it was approved and paid for by insurance company. I cannot use the vest since it gave me vertigo. I hope you call NJH soon, it took me 4 months to get in. It only took Roz 6 weeks, but she did not have a confirmed NTM diagnosis, so I believe she was assigned a pulm as lead dr. My lead dr. was ID, due to confirmed MABC diagnosis. Roz, can you chime in? if I'm wrong.

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Replies to "@sickalot Sepsis is so scary, I was thinking you must have had bad pneumonia to get..."

@kathyjjb You are right, Kathy. Now I have to send a sputum specimen every 2 months to my ID doc.

@kathyjjb I will say I was shocked to hear about sepsis. Don't know how to tell if it is gone. Since I take azithromycin 3x a week I don't think a sputum culture would be accurate.
Right now I am overwhelmed comparing health Ins. having doubts about United so I may have to keep looking outside of PeraCare. Yesterday I asked United about the prescriptions I take and found out that the inhaler and both nebulizing meds are excluded meaning get them else where, they don't have them. The other 5 meds I take had co-pays of $30.00 for 90 days. Not so bad but comparing it to kaiser everything I take is free.
I was told by NJH that the best plan is Original Medicare and then get Medigap for the rest.
Any comments on that?
Thanks, JoAnn