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Treatment options for a Mixed Adenoneuroendocrine Carcinoma (MiNEN)

Posted by barbaravela @barbaravela, 3 days ago

Hello everyone,

My cousin (37 years old) has been diagnosed with a Mixed Adenoneuroendocrine Carcinoma (MiNEN) located in the tail of the pancreas, measuring about 13x15 cm. The tumor is attached to the spleen, the ribs, and possibly some nearby areas. The pathology report mentions a neuroendocrine component, and there might be a few small local metastases near the tumor, but no distant spread so far.

We are trying to understand what treatment could offer the best outcome — surgery first or chemotherapy first?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

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pavlina60 | @pavlina60 | 2 days ago

Hello! I have been diagnosed with pNET similarly (15×4.9×16cm) at the same time as endometrial cancer (via DG-PETscan). After Ga-dotatate PET I undervent simultaneous surgery for both with the removal of the tail of the pancreas, spleen, gall bladder, same stomach resection, as well as liver debulking and total hysterectomy on Feb.1 2022. In March was my first Somatouline/Lanreotide injection. I have been on it since, with CT scans to follow the treatment every 3 months the first year, every 4 mo the next, and am on twice a year now. I have multiple metastases in the liver.
Take ir easy! This is not a death sentence! Requires some diet adjustments and regular treatment! Hugs and keep the faith! 🦓💜

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