@zash15
Being on both Eligard and Zytiga For two years can really keep your PSA down. Hopefully his stays down after his stopping treatment. Testosterone usually doesn’t rise to what it was before ADT was added, but it rises slowly and when it hits around 150 he should start feeling a lot better..

Your husband might benefit from going to an ancan.org Speaking freely meeting. They have them twice a month and people who have cancer can go there and discuss issues other than treatment. People talk about their feelings and how they are handling having cancer. Most of the people are prostate cancer survivors. They also have advanced prostate cancer meetings, weekly that discuss treatment, and what can be done. If his PSA starts rising, he can get some really great feedback from them, they have been helping people for 15 years with treatment options.

I’ve had prostate cancer for almost 16 years. It has come back four times including after surgery and radiation. I am stage four and castrate resistant, but if you met me, you wouldn’t have any idea there was something wrong. I have BRCA2, which prevents my body from fixing DNA error. That’s why it keeps coming back. I attend at least nine online meetings every month to keep up with the latest in what’s going on in prostate cancer treatment. Besides that I attend multiple online seminars.

The drugs available have kept me alive and well. He should realize there are multiple treatments he can have over the years that will keep him alive.

I know people with Gleeson nine that are still alive after 20 or 30 years after treatment. I know people that have been told they only have three or five years to live and are still alive double that amount of time. Prostate cancer is not a death sentence anymore, Most people die of something else.

Has your husband had genetic testing?

Get genetic testing to find out if genetics could be a factor. Does anybody else in your family have cancer? You can get it here for free, takes 2 to 3 weeks to get the results and a genetic counselor will call you. They will send you a kit that you return in the mail.

Prostatecancerpromise.org

Don’t check the box that you want to have your doctor involved or it will greatly delay the test.

The genetic problem I have can be treated by a specific drug when what I am taking now stops working.