@tomrennie doing okay. Main issue is near exhaustion at end of day. I could tell a difference between round 1 & 2. Hoping this doesn't get worse after round 3.

@tomrennie
After seeing Dr. Hobday at the Mayo Clinic he recommended I take two chemo meds instead of the PRRT treatment.

I think this was because of what the pet scans and liver biopsy had shown.

These drugs are capitatabine and temozolomide.

I’ve seen my oncologist Dr Doug Nelson in the Norton system in Louisville, Kentucky, who concurred with Dr. Hobday..

Dr Nelson then sent this info to the Norton specialty pharmacy which is supposed to be coordinating my getting me these medications.

I’m supposed to start taking the two chemo meds next week.

I have a prescription plan under Medicare called Wellcare.

It seems Wellcare does not really care about me.

I had a disturbing call from the Wellcare representative yesterday who claimed neither of these drugs are covered.

My Nortons doctor’s office had informed me that these are both available in generic form and are almost always covered by insurance companies.

But the Wellcare representative with whom I spent well over an hour on the phone, claim these medications that I will take at home should be covered by Medicare part B.

She also said I can start an expedited appeal process.

That involve dher asking me multiple times the same questions (I had no answers to:
such as who is a prescribing physician from the Norton specialty pharmacy.
And what dosage would I be taking. And how did I do when I took this drug before.
And then she asked me the same questions at least five or 10 more times in the course of the conversation. She was polite, but did not seem to have any idea what she was talking about. Or to understood the facts I had told her. Very frustrating and disturbing.