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My nephrologist wants me to take Jardiance for CKD?
Kidney Conditions | Last Active: 8 hours ago | Replies (51)Comment receiving replies
@mnsansei My out-of-pocket limit is $3850 with $250 deductible (new) Part D deductible on some drugs. Eliquis is still expensive. Farxiga is $42 monthly. I am on Entresto for CHF but through the Patient Assistance Program. That stops this year as there is now a generic. What also drives me nuts is all the side effects from all of these meds. I am on 11 meds plus insulin and lidocaine, and diclofenac. I honestly wonder sometimes if it is all worth it.
Replies to "@mnsansei My out-of-pocket limit is $3850 with $250 deductible (new) Part D deductible on some drugs...."
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@tntwo99 Wow! I thought the out of pocket limit was limited by federal law beginning this year. Perhaps it's only limited for Medicare Advantage plans like we have.
Big decisions like the one you are contemplating are the worst part of medical treatment.
I don't have quite as many meds as you do but wonder if they have side effects that I have been thinking are just old age. The priciest is Repatha (finally something that reduces my blood lipids) at $60/month--and that's just two doses. The other expensive one is colchicine (for gout) but is only taken when I have a flare. The downside of gout, aside from having to take another med to lower uric acid, is that I've had to almost become a vegetarian so I don't get flares. Flares are not only painful but could do serious damage to my already weakened kidneys. The upside (?) of gout meds is that I lost 40 pounds.
I stopped getting a med, velcade, in March 2023 for the main kidney problem. It took almost two years for my doctor to say he thinks I might be in remission. Getting velcade was an off label use for CKD. I'll know more today, I think, about whether I am still in remission. That treatment has had the worst side effect. It was purposefully given to me to make my immune system ineffective. I apparently didn't ask enough questions before agreeing to the treatment. I am still suffering from not having an effective immune system so I catch what seems like every darn virus. It takes way to long to get over these. I tested positive for 22 days when I had covid even though I was eligible for and took an immune system boosting med that was only offered to patients like me who had had velcade and its relatives. Plus Paxlovid to help reduce the length of the illness. My doctor recommended a trip to the ER which I decided was not a good idea when the ER was overflowing with covid and RSV patients. A recent cold lasted five weeks and may have triggered a relapse of infectious mononucleosis. So far the only successful strategy to avoid getting sick is to stay home. I'll have to decide whether it is worth it to be treated again if the kidney problem is re-awakening.
You are in a hard place. Don't hesitate to vent some more if it helps.