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For Newly Arrived Bros: A Day In The Life With ADT
Prostate Cancer | Last Active: 2 days ago | Replies (64)Comment receiving replies
@mjp0512
How's the side effects, now coming up on 5 months?
I am now 17 months on ORGOVYX. My side effects were originally not so good, got better for awhile, now a mixed bag but with some things that are from other sources, not all ORGOVYX.
It gets complicated.
Hope you are doing well!
PAUL
Replies to "@mjp0512 How's the side effects, now coming up on 5 months? I am now 17 months..."
@paul28 - hey Paul my situation - gleason 8 with invasion to seminal vesicles - 7months on orgavux they want me to do 3yrs. Just wondering how long they want you on adt .I'm being treated in Florida at Cleveland clinic. Ty Gary
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@paul28 Hi Paul. Side effects have calmed significantly. Or...I'm just used to them. Hot flashes are much fewer and milder when they do occur. Joint stiffness is still noticeable but not painful as it was with the exception of right shoulder but there might be something else going on there. I'll give it a few more weeks and if still troublesome, I'll get to a sports doc to check it out. Had RO review the PET and it's not cancer so probably just arthritis. Loss of muscle tone is pretty obvious but walking and resistance bands are slowing down a full crash there. Other than that, other noticeable side effects are from IMRT (just completed 10/27) more so than ADT. You're right, it does get complicated. Wishing you well on your journey, too!