← Return to What to do? Post RP, Gleason 9, Prostate ductal adenocarcinoma

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Profile picture for Jeff Marchi @jeffmarc

@sriddle1
No, just the PSMA pet results should be enough.

Get genetic testing here to find out if it could be a factor. Does anybody else in his family have cancer? You can get it here for free, takes 2 to 3 weeks to get the results and a genetic counselor will call. They will send you a kit that you return in the mail. They just have to spit in a tube and return it.

Prostatecancerpromise.org

Don’t check the box that you want to have your doctor involved or it will greatly delay the test.

If his absence is due to fear, let him know that the treatments that are available give people many years of progression free survival. I was diagnosed almost 16 years ago. I have BRCA2 a genetic problem that prevents my DNA from correcting errors, As a result my cancer keeps coming back. I’ve had surgery and radiation and it keeps reoccurring, but the drugs that are available today keep me alive and undetectable for a significant time. You would never know I had prostate cancer if you met me.

It is not time for him to throw in the towel, It is time to proactively pursue the treatments that are available.

I know people with Gleason nine that are still around 20 and 30 years later, After treatment. A few of them have been told by their doctors they only had three or five years to live and they just sort of laugh because they’ve lived almost double that time, and still have treatment available.

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Replies to "@sriddle1 No, just the PSMA pet results should be enough. Get genetic testing here to find..."

@jeffmarc thank you for the info on genetic testing. I will get that kit.

Yes, his mother died of colon cancer and his brother had a highly aggressive prostate cancer with RP + radiation. He ended up dying of a melanoma. I wonder if the melanoma was caused from the prostate cancer?

@jeffmarc also, thank you for the encouragement. It really means a lot to me.

Had your PC spread outside the prostate as well? What were your results before treatment?

@jeffmarc, hi and thank you for reaching out to me.

We had quite a day today. After receiving the PSMA scan results, we saw that the scan didn’t detect any nodule, bone or other organ involvement only to be corrected today at appointment with RP surgeon that the scan is only 40% accurate. Of course, the results from the actual pathology of nodes, etc are most accurate. Ugh. Whiplashed. My hope and joy yesterday was unfortunately lost today at our appointment.

He has an appointment again on 12/9/25 to test PSA. Next step will be determined at that point.

Praying hard.