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My daughter was born without any hip sockets. After many doctors and exploratory surgery all I hear now is there is nothing to do for her. She is ten and she taught herself how to walk, run sit and even ride a bike (with training wheels). She suffers from a lot of pain and has very poor stability or coordination, but she is a miracle and I would love to hear from anyone like her. I would love to know if there is anyway to build her a socket or make her pain less if at all possible. Thanks for sharing and allowing me to share
Replies to "My daughter was born without any hip sockets. After many doctors and exploratory surgery all I..."
Hello @cainadc and welcome to Mayo Connect!
How wonderful that you are seeking the best care for your daughter. She is remarkable to have made so much unexpected progress. You must be very proud of her!
Has she ever been to a Mayo facility for a consultation? I understand that Shriner's Hospital is also good at orthopedic problems with children.
I look forward to hearing from you again and getting updates from you about how she is doing and what you are learning about this. Will you post again?
Your daughter sounds like quite a girl. I am assuming that since she doesn’t hip sockets she may have one leg shorter than the other which will cause her not to stand straight. If that is the case I hope you have looked into a shoe lift for the shorter leg. Your orthopedic doctor should be able to refer you to someone who can measure and get the right lift she needs. This really helped with my back pain and ability to stand straight. But I agree with Teresa, you should see if you can go to a Mayo Clinic....I wouldn’t give up, technology is allowing for amazing things these days. Good luck.
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@cainadc Your daughter sounds like a very brave and tenacious young girl. I hope there is something out there that can help her.
JK