@brettiquette, thank you very much for relying to my post.

Yesterday and today were quite the days. I spent most of yesterday calling around to get his PSMA Scan results, demanding a post op RP appointment with actual doctor that performed the surgery, etc.

We were whiplashed emotionally too. After getting the scan results, it indicated no nodule involvement, bone or other organ involvement. Well, come to find out today at our appointment that the PSMA Scan is only 40% accurate and of course the post op RP pathology was more accurate. He does in fact have 2/9 affected lymph nodes, SVI, bladder neck invasion. Ugh.

I was proud of myself for being persistent and getting him an appointment with actual doctor a not the NP. We at least felt like we had a better understanding of his condition etc.

They automatically had him do his PSA bloodwork done before the appointment today which showed some detectable PSA. Doctor said that today’s PSA is not as accurate as it will be at the next collection date of 12/9/25. He said it’s too soon (2.5 weeks post RP) to have an accurate number at this time

Wow, the radical emotional whiplash of having a brief moment of hope only to realize the scan results aren’t nearly as good as actual pathology. I guess the good news is the scan didn’t show any cancer in his bones or other organs 🙏.

I am just getting back to all of you kind people that took the time to comment on my post.

Thank you kindly,

SR