@surftohealth88 thank you for your reply.

I am feeling more than frustrated with the care I feel he received post op. I was shocked to find out that we were only meeting with a NP for a very important post op visit. She very loosely glazed over the report, had a nurse remove his catheter, told us to make a 6 week appointment for PSA testing and that was that. I must say, I expected more from COH.

He also has been pretty much ignoring or refusing to take an initiative in this process. It’s been mostly left up to me. He seems upset and annoyed that I have been ferocious in my reading and trying to educate ourselves. I feel lost. I feel like we’re just out here trying to figure it out on our own.

We also weren’t given a proper staging of his disease which I think is disingenuous at best. I think had the post op appointment been with the doctor himself with real talk etc., he’d more likely be taking this more seriously.

I am going to request a hard copy of the PSMA scan results and get them into another doctor he has already had a consultation with at UCLA.

Thank you