Connect
← Return to What to do? Post RP, Gleason 9, Prostate ductal adenocarcinoma
Discussion
What to do? Post RP, Gleason 9, Prostate ductal adenocarcinoma
Prostate Cancer | Last Active: Nov 8, 2025 | Replies (59)Comment receiving replies
@jeffmarc thank you for your reply.
I agree that his PSA levels will show present even post RP.
Should he wait for any genetic testing to be done in addition to his PSMA results before starting/exploring these?
He is pretty absent in this process so it’s making it difficult for me to navigate since he shows no interest in caring.
Replies to "@jeffmarc thank you for your reply. I agree that his PSA levels will show present even..."
Connect
@sriddle1
No, just the PSMA pet results should be enough.
Get genetic testing here to find out if it could be a factor. Does anybody else in his family have cancer? You can get it here for free, takes 2 to 3 weeks to get the results and a genetic counselor will call. They will send you a kit that you return in the mail. They just have to spit in a tube and return it.
Prostatecancerpromise.org
Don’t check the box that you want to have your doctor involved or it will greatly delay the test.
If his absence is due to fear, let him know that the treatments that are available give people many years of progression free survival. I was diagnosed almost 16 years ago. I have BRCA2 a genetic problem that prevents my DNA from correcting errors, As a result my cancer keeps coming back. I’ve had surgery and radiation and it keeps reoccurring, but the drugs that are available today keep me alive and undetectable for a significant time. You would never know I had prostate cancer if you met me.
It is not time for him to throw in the towel, It is time to proactively pursue the treatments that are available.
I know people with Gleason nine that are still around 20 and 30 years later, After treatment. A few of them have been told by their doctors they only had three or five years to live and they just sort of laugh because they’ve lived almost double that time, and still have treatment available.