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Suddenly much better

Polymyalgia Rheumatica (PMR) | Last Active: Nov 12, 2025 | Replies (54)

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Profile picture for ropnrose @ropnrose

@leonalawrence My PMR and suspected GCA appeared simultaneously. My rheumatologist put me on 60 mg. of Prednisone for 6 weeks, them I started my taper. When I got to 10 mg., I had a flare and my GCA symptoms started to return. I was also having the classic PMR pain. I discussed Actemra infusions with my rheumatologist. I learned a lot about Actemra in this forum from others. She agreed to prescribe it. That was in Jan. 2025. I get the infusions every 4 weeks. I have been able to taper to 1 mg. (I'll be done in a week) without any issues. I was very active before these diseases. Within 3 months of starting the infusions I felt remarkedly better. I wasn't back to my old self, but I didn't have any pain or fatigue. I was able to resume pickleball and was able to play golf more than one day a week. I just returned from an 11 day trip to Iceland. I did a lot of walking. Although my stamina hasn't completely returned, I feel like I'm getting close to my pre-PMR/GCA stamina.

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Replies to "@leonalawrence My PMR and suspected GCA appeared simultaneously. My rheumatologist put me on 60 mg. of..."

@ropnrose
Actemra. I haven't read about Actemra but will. Thanks for sharing your story of success. I will share your story with my friend with GCA.
How long will you be on Actemra?