1. < Bladder Conditions
Profile picture for Kelly, Moderator
Moderator

Bladder conditions support: Introduce yourself and connect

Posted by Kelly, Moderator @klp, Sep 26 4:08pm

Welcome to the bladder conditions support group on Mayo Clinic Connect.

This is a welcoming, safe place for anyone living with a bladder condition, like cystitis, UTIs, overactive bladder, interstitial cystitis or overactive bladder. You’re invited to share your experiences, ask questions big or small, and offer encouragement to others walking a similar path.

Please take these steps to participate in the group:
- Follow the group.
- Browse the topics.
- Use the group search to find answers to your questions.
- Introduce yourself.

No matter where you are in your journey — newly diagnosed, managing symptoms for years, or supporting a loved one — you’re invited to join the conversation and connect with others.

Let’s chat. Why not start by introducing yourself? What is your experience, or your loved one’s experience, living with a bladder condition? (i.e., what condition, how it’s managed)?

Do you have a question to ask or a story to share?

Interested in more discussions like this? Go to the Bladder Conditions Support Group.

Profile picture for heaviside
heaviside | @heaviside | Nov 2 1:50pm
In reply to @klp "Welcome to the new support group dedicated to bladder conditions. I’d love to hear from some..." + (show)
Profile picture for Kelly, Moderator @klp

Welcome to the new support group dedicated to bladder conditions. I’d love to hear from some of you who have shared your experiences before: @tom1984, @vickij1956, @pml, @ladybear57, @louisejewell, @ainsleigh, @glinda47, @lucy155, @dks, @josieglow, @nonnahelen, @dbamos1945, @justjane8, @mmorley, @sparkyd1, @jjb1225, @robtliz, @gwladj76, @ggr, @collenp, @minischnauzer, @jdbjsmith, @cavman9, @unvecchiouomo, @mirsy, @yanina

Check it out. There's new group on Mayo Clinic Connect dedicated to bladder conditions (https://connect.mayoclinic.org/group/bladder-conditions/). Your discussions have been moved to this new group. Be sure to follow the group to get notified of new posts.

So let’s get connected. Take a moment and introduce yourself. If you’ve been managing a bladder condition, what’s one tip or coping strategy that has helped you most? And if you’re newer to this journey, what’s a question you’d like to ask the group?

Jump to this post

I am an 82 year old male. I have to urinate anywhere from 4 to 6 times a night. Medication has not helped. I am undergoing an InterStim test period starting next week (11/4/2025), lasting for a week. If that is successful, I will likely have the InterStim implant. The major reason being that botox injections appear to work well, but only last six months, and I don’t want to repeat the injections that often, especially as I get (even) older. Medtronic claims the battery will last for 12 years, and that I can still have an MRI done after the implant.

I am looking for advice on what to do. Should I try the botox injections before I commit to the implant?

Thanks for any advice.

REPLY
Profile picture for travelingman
travelingman | @travelingman | Nov 2 10:21pm
In reply to @klp "Welcome to the new support group dedicated to bladder conditions. I’d love to hear from some..." + (show)
Profile picture for Kelly, Moderator @klp

Welcome to the new support group dedicated to bladder conditions. I’d love to hear from some of you who have shared your experiences before: @tom1984, @vickij1956, @pml, @ladybear57, @louisejewell, @ainsleigh, @glinda47, @lucy155, @dks, @josieglow, @nonnahelen, @dbamos1945, @justjane8, @mmorley, @sparkyd1, @jjb1225, @robtliz, @gwladj76, @ggr, @collenp, @minischnauzer, @jdbjsmith, @cavman9, @unvecchiouomo, @mirsy, @yanina

Check it out. There's new group on Mayo Clinic Connect dedicated to bladder conditions (https://connect.mayoclinic.org/group/bladder-conditions/). Your discussions have been moved to this new group. Be sure to follow the group to get notified of new posts.

So let’s get connected. Take a moment and introduce yourself. If you’ve been managing a bladder condition, what’s one tip or coping strategy that has helped you most? And if you’re newer to this journey, what’s a question you’d like to ask the group?

Jump to this post

@klp

REPLY
Profile picture for travelingman
travelingman | @travelingman | Nov 2 10:29pm

My bladder was nicked by radiation while treating prostate cancer approximately 8 yrs. later i have burning & blood in my urine & urine is brown colour i took some antibiotics it stopped for a year & it just came back now the same symptoms i was told hyper barack therapy is there another method ?

REPLY
Profile picture for jarviscloutier
jarviscloutier | @jarviscloutier | Nov 7 2:21pm
In reply to @klp "Welcome to the new support group dedicated to bladder conditions. I’d love to hear from some..." + (show)
Profile picture for Kelly, Moderator @klp

Welcome to the new support group dedicated to bladder conditions. I’d love to hear from some of you who have shared your experiences before: @tom1984, @vickij1956, @pml, @ladybear57, @louisejewell, @ainsleigh, @glinda47, @lucy155, @dks, @josieglow, @nonnahelen, @dbamos1945, @justjane8, @mmorley, @sparkyd1, @jjb1225, @robtliz, @gwladj76, @ggr, @collenp, @minischnauzer, @jdbjsmith, @cavman9, @unvecchiouomo, @mirsy, @yanina

Check it out. There's new group on Mayo Clinic Connect dedicated to bladder conditions (https://connect.mayoclinic.org/group/bladder-conditions/). Your discussions have been moved to this new group. Be sure to follow the group to get notified of new posts.

So let’s get connected. Take a moment and introduce yourself. If you’ve been managing a bladder condition, what’s one tip or coping strategy that has helped you most? And if you’re newer to this journey, what’s a question you’d like to ask the group?

Jump to this post

@klp My name is Rochelle, I am 66 years old. After two years of every test you can think of to find out why I have constant pain/burning in my pelvic area I'm about at the end of my rope. I've been told I have hypertonic pelvic floor disorder-looks like I hold my stress there-it doesn't relax..it oftentimes feels as though I have an active UTI even when I don't. My bladder doesn't empty completely, I have to self cath. once per day now. Urologist has brought up the Interstim implant, I am very leary about it. I don't feel like Dr.s understand or know what to do, I am constantly researching looking for answers, constantly fearful that I have cancer that is being overlooked. Dropped weight for no reason, and appetite is nothing like it used to be. It's so hard to be positive about life. Hoping to meet some kindred spirits who can relate and maybe offer some advise.

REPLY
Profile picture for mpersonne
mpersonne | @mpersonne | 3 days ago

Im currently dealing with Prostate issues, and just received my MRI results in my portal, and not only did they see a 10mm lesion, they also said it looks like bladder obstruction. Below is directly from the report, so not sure what it means, for I pee just fine, and no issues. My follow up visit to urologist is tomorrow, so im sure he will discuss.

Suggestion of chronic bladder outlet obstruction
Urinary bladder: Increased trabeculation and/or wall thickening

REPLY
View MoreView Less
Please sign in or register to post a reply.