← Return to BCG treatment done, but cystoscopy found new tumor: What next?
DiscussionBCG treatment done, but cystoscopy found new tumor: What next?
Bladder Cancer | Last Active: Nov 19 1:04pm | Replies (16)Comment receiving replies
Replies to "Hello @stanghbogdan1. It is not unusual for recurrence, or for BCG failure. My husband experienced this..."
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@sepdvm
My husband is in similar situation. Three years ago we started at Mayo in Rochester because we weren’t getting a diagnosis here. In hindsight, the blood in his urine was the moment to run to a good institution lije Mayo. We found a facility near us to administer BCG. After two rounds it failed. That facility could not do the gem/doc that Mayo advised, so we found that a Urologist at KU med center would, so we switched. The gem/ doc seems to have worked for high grade tumors, but at three years( 5 TURBTs), with a removal of low grade tumors, Dr is not continuing treatment- monitoring only. He’s having a cysto 12/23 and hopefully he’s clear. My husband is tired of treatment so the monitoring only has been wonderful. Hopefully Thats will continue. TURBTs are pretty disruptive and require healing time and difficulty with bladder control, right?
It seems like both at MAYO and KU, the first thing they recommend is totally removal, but they listen and understand it’s not what we want. Not yet.