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Walking without a hip joint

Bones, Joints & Muscles | Last Active: 3 hours ago | Replies (515)

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@mary121658

Hi I was beginning to think I was the only one without a hip. My 1st hip was done in 2012. I had Avn. I woke up screaming in pain and had a drop foot. The surgeon had cut 3 nerves. My tibial, peroneal and sciatica. I didn't get infection but I saw a neurologist for the excruciating pain. He did nerve conduction studies and told me I have RSD... REFLEX SYMPATHETIC DYSTROPHY SYNDROME. It was due to the mistakes made during surgery. There is no cure and I've never had pain so severe as this. I see a pain management Dr and I'm on methadone as well as I get ketamine infusions for the RSD. That is the only thing that helps me to deal with this disease. I'm atrophied up to above the knee and I can't be touched that's how bad it is. Ok then in 2015 I was told the other hip was necrotic as well. I thought long and hard about going through this surgery again but the pain of walking with a walker was more than I could stand so I had the surgery. It went well. I had pain but it was surgical pain. I expected that. I was good for about a year and a half and then woke up one morning screaming. I went to the ER and was admitted due to infection. I couldn't believe it. I'm here again with a hip issue. They removed the artificial hip and cleaned out the whole area and put in a spacer plus 6 weeks of IV antibiotics. I went to rehab. I was walking with a walker. At the end of the antibiotics 6 weeks later I'm still in the same pain. I told the Dr in rehab but I was sent home anyway I couldn't stand it anymore and again I was at the ER. I was right that pain was the infection. It never went away. The spacer was removed and again the whole area flushed and cleaned. The infection had gotten into the bone so I lost several inches off my leg and they put antibiotic seeds in and that was it. The surgeon mentioned getting a new hip replacement put in if I went 4 months without infection. I asked if I could live and walk without a hip and he said yes however he thought I'd be in a wheelchair since I don't have help from the other leg. I told him I'd rather be in a wheelchair than to take a chance of this happening again. I've been in a wheelchair since June had a drainage tube for 3 months until it got dislodged in the middle of transferring from the chair to the bed. Thankfully no infection since July. I'm now on doxicyclene to hopefully keep me from getting infections for the rest of my life. During these infections I have been on vancomycin which didn't work. I had mrsa which is very difficult to get rid of and is resistant to some antibiotics. Then I was put on doxicyclene.and merrapenum both very expensive antibiotics. I was on them for 7 and a half weeks. I'm now on daptomycin for life. I'm only 59 years old. I have osteoarthritis, osteoporosis, diabetes type 2, copd, hypothyroidism, and stomach problems as well. I developed a rash all over my body which a dermatologist did a biopsy and it came back as a drug allergy but to what I can't get an answer. I've had the rash almost instantly after starting the daptomycin. I was taking 100mg twice a day. I stopped taking one of them in hopes this horrible itchy rash would go away. I've had it since July and it still itches constantly. Mostly at night. Im so disgusted I can't even walk to the shower. I have to use a basin and get washed while I'm on the bedside commode. I scrub my body every day really hard so this rash doesn't give me another infection.. Any advice would be greatly appreciated. Ty.

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Replies to "Hi I was beginning to think I was the only one without a hip. My 1st..."

Iam so sorry what a terrible ordeal and you are so very Young. !!!!! Your case sounds similar to what happened to my brother but it was his knee. He is supposed to meet tomorrow with his Dr. to decide if the infection is full gone . Im so worried after seeing what he has gone through he is also in a wheel chair and contact pain. We thought he was the only one with such a disaster I am so grateful for you posing your story. My brother is now available for in home health care do you have help?
Stay strong !!!

Mary, I would love to connect with you. I had a Girdlestone in June 2019 after breaking my femur and getting a MRSA infection. How are you doing now.