I have M Abscessus since last January. I was put on the big 3 for Mac in 2022 and it cleared. The MAC returned last January. My ID Consultant has adopted watchful waiting. I had an appointment with him on Thursday and he says that I will have to be treated for the Abscessus. He wants to put me on IV Amakacin but I have heard that the side effects are awful. I still work as a teacher 3 days a week and do not want to retire just yet. I was full time until I started the treatment for MAC the side effects were awful. I was on daily treatment for 14 months and had 6 months off work. I lost a lot of weight and was fatigued.
I am starting to feel like that again. I am interested to learn more about the 3 day IV Amakacin treatment and it is great to hear that you feel alright. Just curious to know if you are still working. I do daily airway clearance and exercise. No 2 days are the same! Just interested to know if others have done well on IV Amakacin and the other antibiotics for Abscessus. My experience with the big 3 is making me feel anxious about having anymore treatment. My weight is still low at 52kg and that is while I am on no treatment. Would love to hear how others have coped. Thanks