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Visit to National Jewish Health in Denver, CO

MAC & Bronchiectasis | Last Active: 8 hours ago | Replies (76)

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@djwork1 Thank you! I've now had 4 negatives but in August had a new nodule-whatever that is. I'm getting rechecked in a few weeks to see if it's still there. Yes, my insurance covered it. I have a Medicare advantage plan and NJH was in my provider list. I contacted my insurance and asked, and I also spoke to NJH. It was all covered and just had to pay the copays. I also know of a home that is very nice and though she rents on Airbnb, since she is a friend of a friend of mine, she gives me a great rate-so I don't go through Airbnb. I think it was about $100 or $110/night. She does allow pets, so I store my pur-air filter there-which you could use. Plus she super cleans it prior to her NJH renters. Yes, I was counseled on Nutrition-sorry forgot to mention that-but we mostly talked about what I can't eat while on Linezolid, moot point now. So, it sounds like you don't have cavity disease. If that's the case, my biggest recommendation is to nebulize with 7% hypotonic saline. My insurance pays for the 4 ml vials but needs a script. Spontaneous culture conversion is typically 15% (if my memory is correct) but there have been that have shown up to 25% while nebulizing with 7% saline for those with nodular BE (not cavity disease). Unfortunately, I only found 2 studies and the participant size on one was too small to come to a conclusion. Currently, a new study at Univ of Oregon will have 100 participants.

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Replies to "@djwork1 Thank you! I've now had 4 negatives but in August had a new nodule-whatever that..."

Excellent information. Thank you so much for this. I may contact you next
year if I decide I need to go to NJH. I have ro see what the CT scan shows
in December. I do not, thankfully, show cavities. I will ask about the 7%
nebulizer next time. Through dumb luck, I discovered this very early. I
would like to start treatment with the hope I can knock it out before it
gets much worse.

I have a United Advantage plan, so I'm happy to hear they took your plan.
That gives me hope.
Thank you for this info Kathy.