Sound comments above. I will add one thing. "PET scan results aren't posted for me to see ..." Why not?

I demand a hard or digital copy of whatever test result reports were/are completed. A complete copy, not a summary or abstract. My care team knows this and has hard copies ready at my visits. I couldn't make sound decisions if I'm not looking at the same information my providers are. Nor could I ask questions about them if I couldn't see them. And the gobbledygook and legalese in them provides for endless hours of research further enhancing my knowledge and decision making.

As stated above, so sorry you had to find your way here. Best wishes. Hang in there, you got this.