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Multiple Auto-immune Diseases ?

Autoimmune Diseases | Last Active: 2 days ago | Replies (47)

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Yes - my rheumatologist once said that autoimmune disease is like that old saying “misery loves company” - where there’s one, there’s often more. I started with RA, then psoriatic arthritis, ankylosing spondylitis, axonal neuropathy, then moved into “overlap syndrome,” and am now in the final stages of a work up for dermatomyositis - the autoimmune disease that’s probably been lurking in the background all along when it looked like I didn’t respond to whatever biologic I was on, but it didn’t show up in the antibody testing until now. The DM is also rare and my rash is mild and easy to miss, so without the antibody, the myopathy just looked like a thousand other things so it’s taken six long years to get here. It’s frustrating. The kind of DM I tested positive for comes with a high risk of cancer so last week was a series of CT scans. This week is hematology oncology and a PET scan, and next week is a uterine biopsy. Hoping it all goes well, but I’m a little terrified if I’m honest.

Hopefully your Addison’s stays in check and your thyroid remains normal 🤞

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Replies to "Yes - my rheumatologist once said that autoimmune disease is like that old saying “misery loves..."

@pm56 You are certainly dealing with a lot of ADs right now. Is the DM what terrifies you ? So many scans and procedure all at once and you have to be patient waiting for result. I think I’d be terrified, too.
What can you do for yourself that would calm the anxiety? A massage? A good movie? A trip to the ice cream parlor?
Just remember, YOU are a very strong woman, and this autoimmune disease won’t get you. You’ve done it before and you’ll do it again!