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← Return to ADT, maybe not? Anyone opted out of ADT?
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ADT, maybe not? Anyone opted out of ADT?
Prostate Cancer | Last Active: 4 days ago | Replies (138)Comment receiving replies
@jeffmark
I have similar results. Lots of exercise with few effects from ADT (Lupron). I do get tired in the afternoon, but I am 83 years old, so I can blame that on age. I get occasional night sweats, but no hot flashes.
Replies to "@jeffmark I have similar results. Lots of exercise with few effects from ADT (Lupron). I do..."
I am 83 and had a PSA of 11.1, Gleason 4 + 4, Stage 3BT. After 44 radiation treatments and 4 months of Lupron shots I had to stop the Lupron. With radiation I had severe diarrhea and severe Tenesmus pain for about 4 hours every day. With Lupron I started sweating heavily to the point that I could not even have a sheet on me while sleeping because of the sweat. Severe headaches, aching muscles, brain fog, and urinary issues that only began to decline 7 months after my last 3-month Lupron shot. Still having hot flashes and sweating all day long. I stay in shape with an hour long work out at least 4 days per week. My first 2 PSA tests were < 0.1 and testosterone around 8, so my numbers are good. I wish I had done Proton therapy instead of radiation. Still very anxious and sleep poorly getting up 3 times a night. Harvard Men's Health and Duke studies are pushing for a reduction in ADT use because of the severe side effects. Ed
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@budmartin
If you get tired in the afternoon, make sure you do not sleep too long.
If I get tired, I will start a 25 minute timer. I find I go to sleep almost immediately and I wake up, and I feel pretty refreshed. Sleeping longer than an hour can mess up your rem, sleep, and cause you to not sleep as long at night, which then causes the daytime fatigue, which you then sleep too long and then you can’t sleep at night as long. Yes, it is like a revolving circle of fatigue.
I’m 78 in a week and I’m pretty active during the day. I hit the track every day and run a mile twice a day. I come home and I don’t have any fatigue at all. Just took a little time to build up my stamina. Of course at my age, I can’t run real fast.