← Return to CAR-T Cell Therapy: Introduce yourself and connect with others

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Profile picture for kirkwilliams2049 @kirkwilliams2049

@altabiznet I really restarted all activities immediately. I should note that I spent 2 weeks being monitored in the cancer facility. The only thing I couldn’t do was drive for 3 months. They were afraid of neurotoxicity during that period. I really could have driven. Like I said: Magic!

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Replies to "@altabiznet I really restarted all activities immediately. I should note that I spent 2 weeks being..."

@kirkwilliams2049 This does sound like magic. It is great that you had CAR T option for your condition. Where did you have CAR T transplant done - which Mayo Clinic?
I am 9 months post Stem Cell Transplant for a different condition and still very fatigued, need help with my daily activities with a prospect to start recovering only at 12 months post-transplant. But it is good to know, that if I need additional therapy in the future, CAR T will be my first choice. Best regards and thanks for sharing.

@kirkwilliams2049

I'm happy for you and also relieved to hear you share that your experience with CAR T was a positive one. Thank you for posting. My 33 year old daughter with Mantle Cell Lymphoma will undergo CAR T after her BTK-i treatment. I'm newer to this site and reading through the posts this week to acquaint myself with members and their helpful insight. Thank you again!