@dee53
I know that this site does not allow links, but I can tell you the name of the studies that I read. There were several, as one lead to another in my search to find out if Repatha was causing my problems and if there were others with the same side effects as myself. My doctor looked up the side effects in the PDR, but of course, Amgen (producers of Repatha) were not listing many of my side effects in the PDR, although some were listed. This is why I felt like I had to do my own research to find out the cause of the significant debilitation that I was enduring. By this time, I was pretty sure that Repatha was causing my problems.
The first thing that I did was type in Severe side effects from Repatha and went from there. I was looking for medical research from well respected sources that showed any sign of the correlation of my symptoms and Repatha.
I found four articles and abstracts that were pertinent to me.

This is what I found:
From AJMC Article January 5, 2023 EXPERTS ISSUE CAUTION FOR EVOLOCUMAB FOLLOWING NEW REVIEW OF FOURIER DATA: AMGEN DISPUTES THE CLAIMS Author: Maggie L Shaw
This noted that the investigators writing in MBJ Open call for "a complete restoration of FOURIER trial data."
This article was eye opening. Once I finished reading the article, I went back and I clicked the link in this article on page 2 where is says:Publishing their findings just last week in BMJ Open.
That lead me to an article named BMJ Open : RESTORING MORTALITY DATE IN THE FOURIER CARDIOVASCULAR OUTCOMES TRIAL OF EVOLOCUMAB IN PATIENTS WITH CARDIOVASCULAR DISEASE; A REANALYSIS BASED ON REGULATORY DATA.
Both of the upper articles were found in the AMJC site.

I then started researching other articles listing sides effects from Repatha and listed my symptoms. I also typed in my symptoms to see if I could find articles on causes or diagnosis of the type of symptoms that I was having. I found two other articles that lead me back to Repatha. There was enough evidence in my opinion to insist on being taken off the drug. I wish that I had found these articles when I was researching in 2020 prior to starting the drug, but since I had no symptoms, and was in good health other than high cholesterol, I really doubt that I would have found anything. Everything that I typed up in 2020 to do my due diligence prior to starting the drug was showing minimal side effects.
However, after researching in 2024 , I found enough evidence in my opinion to insist being taken off Repatha. I have continued my research throughout 2025 in trying to deal with the lasting side effects from this drug. I have since found that there are others with the same debilitating side effects that I have. I went to sources that had international sharing between medical professionals. These had to do with BMJ Open as well.

These two articles are:
Journal of Neurological Research by Elmer Press
Case Report Volume 9 Number 4-5 October 2019 Pages 72-74
CASE REPORT: J NEUROL RES. 2019;9(4-5):72-74
CHRONIC INFLAMMATORY DEMYELINATING POLYRADICULONEUROPATHERY ASSOCIATION WITH LOW CHOLESTEROL LEVELS: A CASE REPORT IN A PATIENT TAKING PCSK9 INHIBITOR
Diana Carolina France, Neelam Neupane, Maria Riaz, Sanaz Mohammadzadeh, Issac Sachmechi
This manuscript was submitted September 3, 1019 and accepted September 28, 2019
Department of Internal Medicine, Endocrinology Services, Icahn School of Medicine at Mount Sinai, Queens Hospital Center, Jamaica, NY 11432, USA Corresponding Author: Diane Carolina Franco and Neelam Neupane, Department of Internal Medicine, Endocrinology Services, Icahn School of Medicine at Mount Sinai, Queens Hospital Center, Jamaica, NY 11432, USA
(There are two emails attached to those two people listed above, but not sure if I am allowed to put their emails. It will show on the article.)
All authors showing on this article are Diana Carolina Franco, Neelam Neupane, Maria Riaz, San Mohammadzadeh, Issac Sachmechi

The other article that I found was by BMC Open Access
The name of the article is CASUAL RELATIONSHIP BETWEEN PCSK9 INHIBITOR AND AUTOIMMUNE DISEASES: A DRUG TARGET MENDELIAN RANDOMIZATION STUDY
By Weijia Die, Jiaxin Li, Hao Du and Jian Xia
I found it under Arthritis Research & Therapy (2023) 25:148
It was the same site that I found the other article where medical research is being shared by medical professionals.

There is a lot of heavy reading in these four articles and abstracts, but I was willing to wade through it because I was so desperate to figure out what was going on with me. I was in such a physical downward spiral at the time, and knew that if I did not figure out what was causing my medical problems and put a stop to it, that it was only going to get worse. I found my answers and am working towards regaining my health. Even though I have a long way to go, I have made significant improvements since being off Repatha. It has been 13 months since I discontinued this drug.
Like I said before, my Rheumatologist said it could take years to recover from the damage that Repatha caused me. I just happen to be one of the unlucky ones concerning this drug. I know everyone taking this drug do not have all of the symptoms as I have experienced... but I do know that since being off this drug many of my symptoms are gone and my current medical problems are directly related to this drug.
It is my hope that if others are having the same symptoms as myself, they don't have to go through what I did, and will be able to recognize the Repatha link sooner. It took a lot of time to figure out that it was Repatha causing my debilitation, and it took my own personal research to convince my endocrinologist to stop the drug on me and look for other avenues to control my high cholesterol. (I have Familial Hypercholesterolemia. I lead a very healthy lifestyle, so it showed up later in life for me, rather than earlier.)
I am thankful that my primary doctor sent me to multiple specialists to figure out what was going on. He listened to me and cared enough to help me figure out what was happening to me. It has been over a year of tests, treatments and research to finally get the answers that I was looking for.
If you find any other articles other than these in your own search, I would appreciate you letting me know.