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Intrathecal Pain Pump

Chronic Pain | Last Active: 5 days ago | Replies (85)

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@bilt4pain Thanks for getting back to me. I really appreciate it. Wow! Over two years! Now that's what I call being really conservative...or really cruel. Seems like you should not have had to suffer with that pain for so long. I'm at about the 2.5 year mark since my surgery, so it appears that my docs were being conservative as well. There was a point about 16 months ago when I was so discouraged that I began to have that pump output decreased, with the thought of having it removed. I'll just say that after several months and some research I decided to keep it and start going up again. That was a little over a year ago. I have hydromorphone which is 4-5x as strong as morphine. I am at about 1.74 mg per day with 4 boluses. I managed to get all this info from my own searches and from my fellow commenters like you. How was your trial? Injection or temporary pump?
I think hydromorphone might be a good choice for you. If not, you can always go back to morphine. Pain level of 6 doesn't sound like much pain relief. What was the worse that your pain was? I hope you can back to a 4 or better! Have a blessed day!

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Replies to "@bilt4pain Thanks for getting back to me. I really appreciate it. Wow! Over two years! Now..."

@heisenberg34 After my 6 week dry out brain reset I got a 275mcg. Injection. The whole point of the pump is to micro dose. Pain level 6 is if I do nothing all day. I can’t do that. I would love to get hydromorphone. It wasn’t an approved drug in 2018. The biggest issue I face is my location. In TX I had the best healthcare ever. Now I live in Northern MS near the TN border. Most(mine) docs are TN. They won’t allow facet ablations here ??? Had them every 10-12 months. I’m definitely going to call and ask. My next refill is 11/20. They tried switching me to fentanyl. Absolute nightmare. Had it changed on a Thursday afternoon, can take 10-15 hours to make the internal transition. By Friday evening I was completely lost in space. And had a general feeling of malaise throughout my body. I felt zero pain, but with zero cognitive function. It was hell till Monday morning. Thanks for your advice. It was very helpful.