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Walking without a hip joint

Bones, Joints & Muscles | Last Active: Nov 16 8:18am | Replies (515)

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@joanieike

I had bilateral hips replaced in 2013. I have MS and have had a lot of IV steroids. Consequently I developed AVascular Necrosis in both hips.
In Feb 2016 my rt hip began to be very painful to walk on. After 4 months they discovered I had a prosthetic joint infection and over 45,000 WBC in the fluid around my hip. The infection was a progeria bacteria (?).
Anyway my hip was removed in Feb 2017 and I have been without a hip ever since. I had 12 weeks of IV antibiotics and am using 30% weightbearing on walker and a wheelchair.
My infectious disease doc wants me to wait a whole year before they put the new hip back in because of the amount of infection they found when removing the replacement. I also lost muscle, tissue and bone during the surgery because of necrosis.
My muscles have atrophied so much and I can no longer lift my leg when sitting or lying down.
I am really worried about being able to walk again as well as getting another infection.
My family is amazed that I can walk with only an antibiotic spacer.
What are the chances of reinfection? How much function will I get once I finally get a new hip in 2018.
My CRP levels were never elevated until after the surgery although my sed rate was high (which is what led my doc to think I had a PJI).
I will be getting anothe fluid aspiration in Jan or Feb 2018. Until then...I wait and I pray!

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Replies to "I had bilateral hips replaced in 2013. I have MS and have had a lot of..."

I had 4 failed replacements due to infection and when I finally went to mayo they took my hip out and said I needed to leave it out for at least a year . . ..obviously no one wants to hear that but my surgeon said you will know when its time....I made it 4.5 years without a hip (nothing not even a spacer) and when I went back for my 5th replacement last June it was successful (so far lol)
It was a rough 4 years but I knew the longer I waited the greater my chance would be that I wouldn't get infection and so far it has worked. So I encourage you to wait as long as you can....it won't be easy...but in the end may prove to be your best decision!! Good luck! I will keep you in my prayers!