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Intrathecal Pain Pump

Chronic Pain | Last Active: 5 days ago | Replies (85)

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Profile picture for heisenberg34 @heisenberg34

@morkat I just came across your post regarding your pain pump. Looks like you are pretty happy with it. I've been trying to get relief from mine for over two years. Can you tell me what your total, daily output is? Also, do you have any boluses? Do you use them? Thanks for sharing. I apologize if I have reached out before and just forgot.

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Replies to "@morkat I just came across your post regarding your pain pump. Looks like you are pretty..."

@heisenberg34 I can answer that about my pump. My doctor was very conservative about dosing. In theory it’s supposed to be micro dosing. Took well over 2 years before I got to some relief which is to get my pain to a 4. And it got there for several years. Now I’m on flex dosing. I get 1.97ml. Continuous, with 4 daily 2.5ml. Per bolus. Right now, after 8 years I’m at 12.1ml. Per day. And it’s keeping me at a 6. When I was on 24 continuous, I had 2 bolus per 24 hour period. I’d use them both. But wasn’t enough. I think my body has acclimated to the morphine and it’s time for a new drug. Maybe hydromorphone or Dilaudid.

@heisenberg34
my pump is 20ml; rate per day 0.910mg I think my rate is still on the low side. If I have breakthrough pain I take an Oxycodone tablet. I hope this helps.