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@elli7000 I am CKD Stage 4 Severe. My eGFR is 23. My nephrologist put me on Farxiga and said it will help with A1c and CKD, but will DEFINITELY make me pee more. She wasn't kidding.
I will have to see my labs in 2 months to see if Farxiga is helping my CKD. It has helped lower my A1c from 8.5. to 7.1. I usually am around 6.5 when I really take care of my diabetes. But lately I have been in an I DON'T GIVE A DAMN mentality. So tired of testing, finger sticks, and meds. I also have to do INR testing every 2 weeks since being on Warfarin.
I am dreading 2026 because my insurance has instituted a deductible for the first time. I am on a few Tier 3 drugs and not sure how this will play out. I am 79 yrs old and ready to just give in.

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Replies to "@elli7000 I am CKD Stage 4 Severe. My eGFR is 23. My nephrologist put me on..."

@tntwo99

Your message resonates with me. I am so sorry that you are experiencing what I call "treatment exhaustion." I am also experiencing regret that I ever started treatment for CKD. I was briefly at Stage 3a but have been Stage 2 for three years now. Fortunately, I am not diabetic. But that makes it even more stressful to make a decision about starting Jardiance (my insurance only covers Jardiance which is supposed to be interchangeable for what my hematologist/nephrologist wants to fix--high urine protein).

As I wrote earlier, when I asked about side effects to watch for, he said more peeing and fatal skin infections. And I'm supposed to be happy that urine protein is down while spending my life in the bathroom and waiting for that fatal skin infection?

About the deductible. Your maximum out of pocket costs for drugs should be $2000/year. I reach that this month but my husband spent more than $2000 on prescriptions in January so the rest of the year was "free."

If I remember correctly, my MIL was on Warfarin but was able to get switched to another med that didn't require INR as frequently (or perhaps ever again).

Please talk to your doctor about alternatives. I am thinking that mental health should be a priority for our care, too.