← Return to Benign carcinoid tumor in bronchi tube

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@californiazebra
(Hit send by accident) the large 2.6 cm tumor was more likely to spread. I do take octreotide injections every 4 weeks to slow growth even more and control my respiratory symptoms. Very tolerable.

I talked to a lady that had a lobe removed with a 9 cm typical carcinoid and in 10 years never had another one appear. She just had a CT scan each year. I lost touch with her. She was 80 when we last spoke. Many people are one and done for lung NETs. Assume your case is one of those. Even if not, typical lung NETs is very manageable and you will be around a long time. I feel lucky that I have atypical carcinoids and not the common NSCLC lung cancer my young non-smoking brother had. Our cancer journeys have been nothing alike. Mine is so much easier and I’m still here. A NETs specialist can help you be sure you are not overtreated by someone who only treats common lung cancer. I truly believe you will get through this and live a long, happy and fruitful life.

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Replies to "@californiazebra (Hit send by accident) the large 2.6 cm tumor was more likely to spread. I..."

@californiazebra
A couple typo corrections in my message above. That should have said I have typical carcinoids (not atypical which is worse). And DIPNECH should be only 300 documented cases.