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I’ve been on Kevzara for 2 years and off of prednisone four 20 months. I have had one presumed flair and some moderate muscle pain. I am in discussions with my Rheumatologist about tapering off of Kevazara. I am interested in the experience of others, but I might be in the leading edge of experience.

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Replies to "I’ve been on Kevzara for 2 years and off of prednisone four 20 months. I have..."

@howardgm
I am at the point as you. My Kevzara is now 3 weeks apart and plan on going on 4 weeks apart. I have neck pain since stopping prednisone 16 month ago. Had light neck pain before PMR but it became severe after stopping prednisone Finally after 6 month of Pt following repair of a fragmented herniated disc L3-4 ( which gave me severe right thigh pain and weakness) surgery, my neck pain seems to be dissipating . My therapist is willing to give private time to my neck and right leg . I never had back pain . Not all therapists are willing to do this. I appreciate all his effort.
In the meantime my husband is having hip replacement the same day as my rheumatology appointment in 3 weeks
which I had to cancel They said I could come the next day which would not work. He needs today overnight. The next appointment they wanted to give me was in February You can imagine how annoyed I was. Since when I am at her office she basically only checks my blood test since my symptoms are controlled . I asked for permission to take a blood test before I start doing the Kevzara every 4 weeks.
I left out an important piece.
I was on prednisone 15 months and developed corticosteroid myopathy. Both my legs became very weak . That took 6-8 months to get under control with PT.
Thank goodness my physical therapist is a one man show so he follows my progress and changes my therapy with change in my symptoms