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Newly Diagnosed

Posted by tbyota @tbyota, Oct 1 6:57am

My husband (59) was recently diagnosed with Gleason 8 with 2 or 4 areas cant remember out of the 12 core cancerous. He initially had the MRI prior to the biopsy no concerns per his Doctor and Urologist. We are not scheduled to take a PET scan next week. I read if only in his prostate radiation or surgery is the options. However if outside prostate what are the options. Wife trying to navigate and educate myself.

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jeff Marchi | @jeffmarc | Oct 31 3:23pm
In reply to @tbyota "Im just curious. My husband has stage 3. If you have radiation but not the surgery..." + (show)
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Im just curious. My husband has stage 3. If you have radiation but not the surgery and it returns what are your options?

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@tbyota
There werea couple of typos in the first message I wrote I have corrected it. I use voice recognition to write because I have nerve damage to my hand, And I got caught talking to somebody.

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tbyota | @tbyota | Oct 31 4:02pm
In reply to @jeffmarc "@tbyota First steps would be to get a PSMA PET scan to see if there’s metastasis..." + (show)
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@tbyota
First steps would be to get a PSMA PET scan to see if there’s metastasis that can be zapped with SBRT radiation.

The next step would be to go on ADT and an ARSI (Zytiga or a lutamide) To suppress whatever there is and stop it from growing.

If many metastasis are found Then chemo or Pluvicto Could be used.

You should definitely have genetic testing to see if you’ve got a genetic problem. You can get it done for free here.

Prostatecancerpromise.org

Don’t say you want your doctor involved when filling out the form online or they won’t send you the kit until they speak to your doctor. If certain genetic issues are found there are drugs for them specifically.

Did your husband get a decipher test? It will show the likelihood of the cancer coming back. Definitely speak to your doctor about that.

All of the steps mentioned will be done in coordination with a doctor or even more than one doctor.

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@jeffmarc

Thank you

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