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Repatha, side effects and what comes next?

Heart & Blood Health | Last Active: 2 hours ago | Replies (103)

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Profile picture for rhondaj @rhondaj

@gently
Good luck in finding a path that will help you control your cholesterol, and thank you for your kind words. I am happy to hear that my comments have helped you make a decision.
The first two years of being on the drug I did not notice symptoms. I had constant bladder infections and back and hip pain, but did not realize it was from the drug. It was the third year on Repatha that I started having inflammation and tendons snapping for no reason. It was a slow and insidious destruction, so the doctors and I were not attributing it to Repatha. The fourth year of being on the drug was far more damaging and life changing. That is when I started researching and saw the documentation regarding the discrepancies in the Fourier Trials. There was way more information online regarding side effects in 2024 than when I started the drug in 2020.
My back & hip pain and bladder infections completely stopped within two months of being off the drug. After having issues with the snapped tendon for a year and three months while on the drug, my foot finally healed to the point of being able to wear close toed shoes after being off the drug for three months. Unfortunately, the other damage is long term. Still, I am hopeful that I will eventually recover. My doctor has found a statin that actually works for me now. I wish we would have tried that first, but I am happy that we found something that works without damaging me further. Simvastatin worked for me.
I wish you well in your journey finding a medication that will work for you.

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Replies to "@gently Good luck in finding a path that will help you control your cholesterol, and thank..."

I have been on Repatha for 2.5 years, my brother for about 8. He says he has no side effects. I did not think I had any either. Recently, I was prescribed Ofev by my pulmonologist due to ILD and he think that will slow or stop that progression. For context, I am 81 and also have 3 stents in my LAD artery and also take the anticoagulant, Brilinta. I go to the gym, have a trainer, and walk every day. I do have some side effects, including joint pain, weakness and heart burn, from one of those or the combination. I don't feel all that great much of the time but, a few days ago I missed my morning doses, and felt better all day. I appreciate your comments and I am going to work on this and talk to my doctors. Thanks very much.

@rhondaj
Hi thanks for your info. Was wondering, do you by chance have a link to the Fourier Trials or can you give me more info so i can try to find the report that you referred to? Thabks!