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CAR-T Cell Therapy: Introduce yourself and connect with others
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 19 6:16am | Replies (351)Comment receiving replies
I didn’t have the car t cell transplant yet, but the doctors keep pushing it. I have follicular large B cell non-hodgkins. I wanna hear about other people‘s experiences before I make a decision, but I gotta make it fast. The cancer is in my bones, my spine and my liver.
Replies to "I didn’t have the car t cell transplant yet, but the doctors keep pushing it. I..."
@pamcatl, I hope you saw the helpful replies you received from other members. Did you decide whether or not to get CAR-T cell therapy? How are you doing?
@pamcatl
Hi Pam This is my first post on this site. I had Car T Cell treatment on July 22 of this year
I just got my 3 months pet scan and no cancer is showing. I also had the exact same cancer you did and it was very advanced. This was my fourth time having non-hodgkins lymphoma It started when I was 48 went into remission for long time Over the past ten years has returned several times and the last treatment did not work. I am 71 now and I also was very hesitant about this treatment. I did have some side effects. I was only in the hospital for three days and then returned home. It took me till about three weeks ago , around the middle of October,
to really start feeling good enough to go for walks and cook and get out. I had pain, some nausea and few other discomforts, but one day I woke up and the side effects were gone and so far have stayed gone. My oncologist told me that she had heard this before by other patients. You do need someone you can count on to go through this therapy. I am holding on to the thought that I will remain in remission for a long while and hopefully be cured. I have granddaughters to watch get married and great grandbabies on the way. Lots of prayers to you and yours
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@pamcatl
I am sorry that you are in such a devastating situation!
I don’t know anything about the treatment you mentioned! However if it is your only chance then prepare yourself for the fight for your life !! May you be blessed with good caring doctors who will help you!!
I have a different cancer of the blood! But I wanted to say I am pulling for you!!
At times in life , we have to trust and rely on doctors who are treating us !! All of us on this portal are sending you encouragement!! And loving thoughts!! Good luck