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Profile picture for kaa1 @kaa1

I’m sorry to hear that you’ve been feeling ill. I had flu-like symptoms for close to a month when I started taking Tymlos. I was pretty panicked but it did abate and now I’ve been on it for a year and a half and the only side effect that I’m aware of is, brief heart palpitations right after I take it. That’s really not troublesome, I’m used to it. And of course the belly fat lol, but that seems to have “leveled” off. DEXA scores have shown significant improvement particularly in the lumbar. For me the question now is what to do after my 24 months is up. I don’t like any of the other options, I’m terrified of the possibility of jaw necrosis and I also have acidic gastritis, so that will be an issue with some of the meds they are recommending. If anyone is reading this has a suggestion about next step medications I’d be happy to hear your input. In the meantime, keep the faith with the Tymlos, be gentle with yourself and try to hang in there if you can.💜

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Replies to "I’m sorry to hear that you’ve been feeling ill. I had flu-like symptoms for close to..."

@kaa1, I was scared to take Prolia or Reclast, so I chose a weak bioidentical estrogen patch, Menostar. I am still on half a dose of Tymlos with the Menostar. My bone markers were good after 2 months on this combination. I am 74 years old and taking a chance, but at least this is a natural hormone that my body was used to.

@kaa1
My friend is on Evista for the last several years with no bone loss or side effects. She did not take Tymlos. She is 80 years of age and attends exercise classes for seniors. I assume she takes vitamin supplements. She had osteopenia approaching osteoporosis and has now reversed it. No single approach is adequate. Light weight bearing and resistance exercise along with supplementation seems to be the key for improvement and/or maintenance (along with treatment, of course). I am on Tymlos for 1-1/2 months with really annoying side effects. Will stick it out. I cannot take most of the other recommended meds thanks to chronic pancreatitis. Challenges for all of us.