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Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Nov 12 7:05pm | Replies (166)

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Profile picture for kanderstag @kanderstag

@colleenyoung
Thanks for reaching out, Colleen.
I can share my experience with clitoris removal.
I had a diagnosis in 2022 of vulvar melanoma. At the time I was 79.
After biopsy, I had removal of the vulva however the margins were not clear so it was decided to be extra safe and remove the clitoris. I really had no problems with that surgery per se. This was followed by 20 radiation treatments, and 13 months of immunotherapy. I did have what you could expect in terms of raw tenderness but I believe that was more caused by the radiation treatments than the actual clitoris removal.
I’m not sure this is helpful but it was my experience.

Best
Kanderstag

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Replies to "@colleenyoung Thanks for reaching out, Colleen. I can share my experience with clitoris removal. I had..."

@kanderstag
Thank you for letting me know! I have been dreading this!